What’s love got to do with it? Sexuality, puberty and autism

Slides / Recording

On February 6, Arlington SEPAC hosted Dr. Eileen Crehan from Tufts University for an enlightening discussion about sexuality education and autism. As SEPAC board members and parents ourselves, we wanted to share the valuable insights that emerged from this important conversation.

Moving Beyond Crisis Mode

Many of us have struggled with how to approach sex ed with our children. Should we wait for them to bring it up? What if we say the wrong thing? Dr. Crehan helped us understand that waiting for a “problem” before discussing sexuality is exactly what we shouldn’t do. Instead, our community needs to foster ongoing, open conversations well before any issues arise.

What Our Kids Really Need

The evening’s biggest revelation came from learning what autistic adults say they wished they’d known more about. While many of us focus on basic anatomy and safety (which remain important), autistic adults identified different priorities:

  • Understanding sexual orientation and gender identity
  • Learning about consent
  • Developing assertiveness skills
  • Navigating relationships

The Overlooked Sensory Component

One story particularly resonated with our group – about a young man who had a negative first kiss experience because no one had prepared him for the sensory aspects. As parents of children with varying sensory sensitivities, this highlighted how crucial it is to consider the sensory components of relationships and physical intimacy.

Practical Steps for Our Community

Dr. Crehan shared several actionable strategies that we’re excited to implement:

  1. Building Support Teams: Rather than parents handling everything alone, she suggested creating a chart of trusted people who can help with different aspects of sex education. This could include family members, teachers, or healthcare providers who connect well with our kids.
  2. Accessing Better Resources: We learned about several valuable tools:
    • amaze.org for short, visual explanations
    • The “Preparing for Life” book with concrete activities
    • TV shows like “Atypical” that can spark natural conversations
  3. Understanding Real Communication: A key insight was that while we often teach “just say no,” that’s actually the least common way people communicate about consent. Our children need support understanding both direct and indirect communication.

As SEPAC board members, we’re shifting from viewing sexuality education as crisis prevention to seeing it as an ongoing conversation about health, relationships, and self-understanding. Dr. Crehan emphasized that autistic individuals often have more diverse experiences with gender and sexuality than their non-autistic peers, highlighting the importance of creating supportive environments where our children feel comfortable discussing these topics.

Join the Conversation & Additional Resources

This presentation sparked important discussions that we hope to continue. If you missed the webinar, a recording and the slides are available on our website. We welcome your input on how Arlington SEPAC can better support families in navigating these crucial conversations.

For those interested in learning more, Dr. Crehan shared these valuable resources:

  • Clinical Questions: Please direct clinical inquiries to drcrehan@pegasuscaps.com
  • Research Opportunities: Visit the Crehan Lab for current studies
  • Clinical Resources: Find tools and tips at Pegasus CAPS
  • Self-Advocate Materials: Explore OAR’s Sex Ed for Self-Advocates
  • Educational Videos: Check out AMAZE for engaging content

This post reflects key takeaways from Dr. Eileen Crehan’s presentation to Arlington SEPAC. While every family’s journey is different, we hope sharing these insights helps our community feel better equipped to handle these important discussions.

September 2024 SEPAC: Meeting Minutes

Arlington Special Education Parent Advisory Council
Business Meeting Agenda
Initial Meeting for 2024-2025 Academic Year
September 17, 2024 at 8:00p*

Meeting Minutes

Presentation slides

Attendance: 19 families, 6 administrators

WELCOME and MEETING NORMS

  1. Welcome and introduction of new board:

Elizabeth McWhorter, Chair: elizabeth.kidd.mcwhorter@gmail.com

Kate Radville, Co-Chair: kateradville@gmail.com

Courtney Marsh, Secretary: courtneymarsh14@gmail.com

Ann Weissman, Webmaster: waymirea@gmail.com

Krasi Petkov, Membership:  Krasichervenkova@gmail.com

  1. Meeting Norms for SEPAC meetings: Elizabeth shared the norms we’ll use to guide our meetings to ensure we have productive, collaborative meetings. As conflicts arise, they are also meant to help us navigate them together. The norms can evolve based on member feedback. See presentation (slide 3).

[Elizabeth invited feedback from the group]:

  • It’s important to know that people have “different brains” and different styles of communication (e.g. straightforward vs. lots of pleasantries, etc.). No one should read into the tone of a presenter/speaker’s comments at a meeting.  
  • We should consider mentioning disability.

BUSINESS UPDATES

  1. What is SEPAC? (see slide 4 of the meeting presentation for more details)

The mission of the Arlington Public School Special Education Parent Advisory Council is to work towards the understanding of, respect for, support, and appropriate education for all students with disabilities in the APS community.

  1. Bylaws: State law requires they be reviewed every 3 years. Ours have not been reviewed in 10. Earlier this year, an ad hoc subcommittee was formed to review and update them. Changes were made in a few key ways:
    • Updated language (e.g., replaced “special needs” with “disabilities” and added preamble regarding use of “disability”)
    • Clarification of the purpose of the SEPAC (see presentation slide 4)
    • Clarification of Voting Membership (parents, guardians or caregivers of children in need of special education services in Arlington) vs. General Membership (anyone interested in special education)
    • Adjusted Officer Roles and Responsibilities
    • Defined the structure of meetings: in order to make space for different types of conversations (general vs. voting members vs. voting meetings)
    • Voting – limited to parents/guardians of surrogates (important because of change to meeting structure)
    • Role of the board

Questions? Please reach out to Elizabeth McWhorter (elizabeth.kidd.mcwhorter@gmail.com).

  1. Opportunities for Involvement in SEPAC: There are several ways to get involved with SEPAC, and they are all relatively a low time commitment except where noted.
    • Survey Committee– no research experience necessary! 

The SEPAC annual survey is one of our most powerful and visible tools for capturing feedback from the APS community. Members of this subcommittee can help with any of the following:

  • brainstorm ways to reach a wider audience and help spread awareness.
  • survey development/updates: review the questions in the current survey and recommend possible changes / edits.
  • help analyze the results and plan the final report and presentation to the school committee. (Note: this responsibility does not need to fall to the entire subcommittee but does require a bit more of a time commitment in the spring, after the survey results are in).
  • Speaker committee – We are hoping to bring several speakers across a variety of disability-related topics this school year to enrich the community. This subcommittee will:
  • brainstorming topics of interest and potential guest speakers for future SEPAC meetings. 
  • facilitate scheduling, contracts, and payment of fees of speakers (if necessary). 
  • identify opportunities to attend neighboring communities’ SEPAC events and share with the Arlington SEPAC Secretary for awareness.
  • School liaisons – The people in this role help to connect parents to the resources SEPAC offers. Don’t worry – you don’t have to know everything! Board members are always available to help answer any questions you get), Responsibilities include
  • staying abreast of your school’s happenings (often, this just means through the PTO or principal newsletter!) and share any information that impacts the Special Education community with the SEPAC Board. 
  • share important SEPAC news with the school community via the PTO or principal newsletter, as permitted.

We are in need of liaisons at all schools, out-of-district, and homeschoolers. Volunteers so far:

  • Hardy – Tunde Horvath – liaison but PTO meets at the same time.
  • Homeschool community – Kim Carney Wong

UPDATES

6. Special Education in Massachusetts and in Arlington

  • New ‘Consent to Evaluation’ Form: You can find it here on the Department of Elementary and Secondary Education (DESE). If you request an evaluation from APS, they  will send it to you.

[Abbreviated]
It is the responsibility of the Arlington Public Schools to identify any child who is a resident of Arlington, who may have a disability, regardless of the severity of the disability. It is also the responsibility of Arlington Public Schools to evaluate those students to determine if they are eligible for special education or related services under IDEA (Individuals with Disabilities Education Act) or 603 CMR 28 (Massachusetts Special Education Regulations)…

[SEPAC  notes]:  

  1. Child Find is part of the Federal Individuals with Disabilities Education ACT (IDEA).
  2. It is a parent’s right to request an evaluation of their child if they suspect a disability may be affecting their child. 
  • Helpful Resources for the School Year

ADMINISTRATIVE

5. Share feedback with SEPAC! Periodically, the SEPAC co-chairs meet with APS administrators and the superintendent, and community feedback is essential to their ability to share timely, relevant feedback. It is not meant to capture detailed individual family situations, but SEPAC is striving to share themes we hear/read in the feedback so that we can collaborate with APS administration on improvements in the system. The first meeting is on 9/26 but this form will remain live ongoing.

NEW BUSINESS AND OPEN DISCUSSION

  1. Nature’s Classroom – Gibbs
  • Concern was expressed about whether or not it is a field trip that is accessible to all students.
  • A parent shared that the Gibbs principal let her know that data would be collected. We would like to get the data and figure out if there is a path forward.
  • Clarification was provided for the group that this is a two-night, overnight trip for sixth grade students. The trip was held during fifth grade in previous years.
  • Feedback:
    • A parent whose child did not attend shared that communication was difficult – she didn’t know which supports would be available before the deadline to commit.  
  1. Extended School Year (ESY): A parent shared that proposals came late – e.g.  last day of school. This makes it hard to plan. Could these plans be shared sooner?

June 2024 SEPAC: Meeting Minutes

SEPAC Meeting Minutes – June 11, 2024

Introductions – Inae Hwang, Sarah Barton, Jessica Dombrosky, Kate Radville, Alison Elmer, Amanda Donohue, Angel Cronin, Cheryl Miller, Ann Weissman, Joyce Schlenger, Kelley Bostwick, Chris Carlson, Kristin Burke, Lisa Ewick, Liz Exton, Louisa Popkin, Rajkumar Neupane, Sarah Forster, Yuting, Alison Babeu, Krasimira Petkov, Lee Palmer and Elizabeth McWhorter attended

Call to Order

Officers/Committee Reports:

  • Two members of the survey subcommittee are compiling a report for the school committee (Kate Radville and Angel Cronin)
  • The Bylaws Subcommittee have just finished going over the bylaws with a fine tooth comb and editing, and will bring new Bylaws up for a vote in September

Planning Workshops for the Coming Year:

Unsure which workshops are in the works for the coming year, but will be putting it in Elizabeth’s capable hands come September.

SEPAC Board Elections:

  • Elizabeth McWhorter was elected as Chair
  • Kate Radville was elected as Co-Chair
  • Courtney Marsh was elected as Secretary
  • Krasimira Petkov was elected as Membership Officer
  • Ann Weissman was elected as Webmaster.

APS Staff Reports:

Overview of the New IEP Form for Massachusetts

  • Based on research into the old IEP form, they discovered limitations of the previous form.
  • The new IEP form has been redesigned, and is more focused on the student, and with the student’s goals and Team Collaboration with families in mind.

Here is a link to the new IEP form:

https://drive.google.com/file/d/1BBPc2E2LXraCLkROUxQV7fIWwG0i_Zzq/view?usp=sharing

Here is a link to the presentation on the new IEP form:

https://drive.google.com/file/d/1_CqJ2l4Aq6Sru13oiUIBg2S_pPf_daS3/view?usp=sharing

  • We had questions about students participating in their own vision statement. They have developmentally appropriate materials and teams who work with students to get their input. According to Sarah, having targeted questions helps.

There are new workshops available from the Federation for Children with Special Needs on the New IEP Form, and Arlington SEPAC should consider that new workshop when considering which free workshop to choose. Here is a link with more information about it:

Presentation on Arlington Soccer Club’s TOP Soccer Program by Travis Baggett:

  • Travis did not attend the meeting, but we will add a link to their website with more information about the fall program below:

Courtney mentioned that her son had participated in the TOP Soccer program in the past, and would be happy to answer any questions folks had.

Public Participation / New Business / Open Discussion:

  • Ann brought up that the interviews for the new ELA directors happened today, and that SEPAC parents were in attendance. And there was a lot of discussion on the qualifications for the candidates going on in the side.
  • Alison mentioned that there are multiple rounds before they reach the parent forum and round robin stakeholder interviews, so the candidates that reached that point have made it through multiple rounds.

Announcements:

  • If you have any more questions for us over the summer, please send them to arlingtonsepac@gmail.com
  • Check your emails over the summer for updates on what’s coming up in the next school year.

Adjourn

SEPAC Meeting Agenda: May 9th, 2023

5/9/23 Zoom Meeting


PLEASE POST
ARLINGTON PUBLIC SCHOOLS
In accordance with the provisions of Massachusetts General Laws, Chapter 30A Section 20, notice is hereby given for the following meeting of the Special Education Parent Advisory Council,
Tuesday, May 9th, 7:30pm


Join the Arlington SEPAC Recurring Zoom Meeting:
https://us02web.zoom.us/j/86234778319?pwd=ZDFPdDNZZjZxbXVwNUYyZDR1VjJsUT09
Meeting ID: 862 3477 8319 Passcode: 043991


AGENDA

  1. Call to Order
  2. Officers/Committee Reports
  3. Planning Workshops for the Coming Year
  4. APS Staff Reports
  5. Presentation of 2022-2023 SEPAC Survey Results
  6. SEPAC Board Nominations
  7. Public Participation / New Business / Open Discussion
  8. Announcements
  9. Adjourn

Arlington Special Education Parent Advisory Committee (SEPAC) is a parent group that acts as a resource for parents and advises the district regarding meeting the needs of students with special needs. We provide support and networking opportunities for parents and guardians of children with special educational needs, offer workshops and guest speakers to help parents become better informed about special education issues. We meet regularly with school officials to participate in the planning, development and evaluation of special education programs in town.
We hope you will join us!

SEPAC June 2022 Business Meeting Agenda

6/14/22 Zoom Meeting

PLEASE POST

ARLINGTON PUBLIC SCHOOLS

In accordance with the provisions of Massachusetts General Laws, Chapter 30A Section 20, notice is hereby given for the following meeting of the Special Education Parent Advisory Council,

Tuesday, June 14th, at 9am

Join the Arlington SEPAC Recurring Zoom Meeting:

https://us02web.zoom.us/j/86234778319?pwd=ZDFPdDNZZjZxbXVwNUYyZDR1VjJsUT09

Meeting ID: 862 3477 8319

Passcode: 043991

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AGENDA

  1. Call to Order
  2. Approve minutes
  3. Officers/committee reports
  4. Planning Workshops for the coming year
  5. APS Staff reports
  6. SEPAC Board Elections
  7. Public participation / New business / Open discussion
  8. Announcements
  9. Adjourn

Arlington Special Education Parent Advisory Committee (SEPAC) is a parent group that acts as a resource for parents and advises the district regarding meeting the needs of students with special needs.  We provide support and networking opportunities for parents and guardians of children with special educational needs, offer workshops and guest speakers to help parents become better informed about special education issues. We meet regularly with school officials to participate in the planning, development and evaluation of special education programs in town.

We hope you will join us!